Impact and Challenges in Establishing Patient Registries for Rare Disease Clinical Trials

Time: 2:15 pm
day: Clinical Operations Discussion Day

Details:

  • Understanding the associated benefits in better describing the natural history of a rare disease to inform the drug development process
  • How to effectively incorporate multiple stakeholder perspectives when planning and designing patient registries
  • Top tips for incorporating patient registry data to inform and develop more patient-centred clinical trials

Speakers: