NAVIGATING THE COMPLEXITIES OF RARE GENE THERAPY CLINICAL TRIALS

Time: 9:00 am
day: Workshop Day - track b

Details:

  • Understanding the nuances of initiating and running clinical trials for rare patient populations
  • Who are the key stakeholders a clinical team should be collaborating with when commencing a trial?
  • Collaborating effectively with patient groups to optimize the design and conduct of trials
  • Improving the accuracy of finding patients in rare disease populations
  • Monitoring, mitigating, and reporting any potential safety findings
  • Addressing the practicalities of incentivizing patients for their involvement and retention in trials

Speakers: