NAVIGATING THE COMPLEXITIES OF RARE GENE THERAPY CLINICAL TRIALS
Time: 9:00 am
day: Workshop Day - track b
Details:
- Understanding the nuances of initiating and running clinical trials for rare patient populations
- Who are the key stakeholders a clinical team should be collaborating with when commencing a trial?
- Collaborating effectively with patient groups to optimize the design and conduct of trials
- Improving the accuracy of finding patients in rare disease populations
- Monitoring, mitigating, and reporting any potential safety findings
- Addressing the practicalities of incentivizing patients for their involvement and retention in trials