Pursuing Novel Funding Models for Ultra Rare Diseases

9:55 am - Thursday 26th March 2026

  • Highlighting creative funding strategies that can sit alongside traditional grant or venture capital models
  • Defining what foundations look for when making strategic investments and ensuring progress even if a company steps back
  • Showcasing collaborative approaches that keep pipelines alive by piecing together diverse funding sources

Speakers:

CSO
Barth Syndrome Foundation Inc